Monday, October 26, 2009

July 30, 2009- Selecting a Cleft Team

After the Amnio results came back, it was time for us to choose a Cleft team.  The Cleft team consists of doctors, social workers, speech therapists, etc. who will be responsible for the baby's care.  What a huge decision!  It was recommended that we speak with at least two teams before making our decision.  While I wanted to just go with the team who had cared for me, as a parent I needed to be prudent and be well educated before making that decision. 

We first spoke with the team at NYU, the doctors there are on the cutting edge of surgical techniques in repairing clefts and have an excellent reputation.  This team uses a device called NAM (acronym for medical jargon) which is essentially a prosthetic that is placed inside the baby's nose and is adjusted weekly to stretch the cartilage in order to have surgery perfomed earlier.  While I was impressed with all I heard and what I read, all of the doctors were located in Manhattan.  After much discussion, my husband and I just couldn't see how realistic it would be to bring an infant to Manhattan weekly without upsetting our three-year old's life as well.

My second call was to the surgeon who had closed my palate just six years ago.  She also was using the NAM technology and to hear that my former dentist was the one who would create it and adjust it put me at ease, bonus....his office was just 15 minutes from our home!  And so we made an appointment for a consultation, it was important to me for my husband to feel comfortable with this surgeon as well. 

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